{"id":4114,"date":"2013-02-19T08:20:12","date_gmt":"2013-02-19T07:20:12","guid":{"rendered":"http:\/\/buzz-esante.com\/?p=4114"},"modified":"2013-02-19T08:20:12","modified_gmt":"2013-02-19T07:20:12","slug":"lhopital-necker-enfants-malades-lance-un-espace-virtuel-autour-des-maladies-rares","status":"publish","type":"post","link":"https:\/\/buzz-esante.fr\/lhopital-necker-enfants-malades-lance-un-espace-virtuel-autour-des-maladies-rares\/","title":{"rendered":"L\u2019h\u00f4pital Necker-Enfants malades lance un espace virtuel autour des maladies rares"},"content":{"rendered":"<p><strong>L\u2019h\u00f4pital Necker-Enfants malades a lanc\u00e9 en janvier un site web d\u00e9di\u00e9 aux maladies rares et maladies chroniques. Pr\u00e9sentation.<\/strong><\/p>\n<p>Depuis la mi-janvier 2013, l\u2019h\u00f4pital Necker-Enfants malades (AP-HP) a mis en ligne un espace virtuel maladies rares et maladies chroniques Necker: <a href=\"http:\/\/www.maladiesrares-necker.aphp.fr\" target=\"_blank\">www.maladiesrares-necker.aphp.fr<\/a>.<\/p>\n<p>Cette plateforme web s&#8217;adresse aux personnes atteintes de maladies rares, maladies chroniques, \u00e0 leurs proches et aux professionnels de sant\u00e9. L&#8217;objectif de cet espace virtuel est de faciliter et am\u00e9liorer le parcours de soin des patients.<\/p>\n<p><a href=\"https:\/\/buzz-esante.fr\/wp-content\/uploads\/2013\/02\/hopital-necker4.png\"><img decoding=\"async\" data-attachment-id=\"4639\" data-permalink=\"https:\/\/buzz-esante.fr\/hopital-necker\/\" data-orig-file=\"https:\/\/buzz-esante.fr\/wp-content\/uploads\/2013\/02\/hopital-necker4.png\" data-orig-size=\"600,504\" data-comments-opened=\"0\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"hopital-necker\" data-image-description=\"\" data-image-caption=\"\" data-medium-file=\"https:\/\/buzz-esante.fr\/wp-content\/uploads\/2013\/02\/hopital-necker4-300x252.png\" data-large-file=\"https:\/\/buzz-esante.fr\/wp-content\/uploads\/2013\/02\/hopital-necker4.png\" class=\"aligncenter size-full wp-image-4639\" alt=\"hopital-necker\" src=\"https:\/\/buzz-esante.fr\/wp-content\/uploads\/2013\/02\/hopital-necker4.png\" width=\"600\" height=\"504\" srcset=\"https:\/\/buzz-esante.fr\/wp-content\/uploads\/2013\/02\/hopital-necker4.png 600w, https:\/\/buzz-esante.fr\/wp-content\/uploads\/2013\/02\/hopital-necker4-300x252.png 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/a><\/p>\n<p>Il permet de r\u00e9pondre aux attentes des malades et de leur famille en mati\u00e8re d\u2019information sur les maladies rares et chroniques prises en charge \u00e0 l\u2019h\u00f4pital Necker-Enfants malades en rendant plus accessible l\u2019offre de soins et donnant acc\u00e8s aux informations utiles aux parents, aux enfants et adolescents via des espaces d\u00e9di\u00e9s.<\/p>\n<p>Cet espace maladies rares et chroniques met \u00e9galement \u00e0 disposition des discussions entre les internautes et les \u00e9quipes des centres maladies rares ainsi que des \u00e9changes sur des th\u00e8mes fr\u00e9quemment abord\u00e9s par les patients et leurs proches comme les traitements,\u00a0 l\u2019alimentation, la fatigue \u2026<\/p>\n<p>Pour information, l\u2019h\u00f4pital Necker-Enfants malades (AP-HP) compte actuellement 35 centres de r\u00e9f\u00e9rences maladies rares et d\u00e9veloppe dans ses unit\u00e9s de soin de nombreuses sp\u00e9cialit\u00e9s qui permettent le diagnostic, le suivi et le traitement des maladies chroniques et des maladies rares.<\/p>\n<p><em>Source : H\u00f4pital Necker-Enfants malades<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>L\u2019h\u00f4pital Necker-Enfants malades a lanc\u00e9 en janvier un site web d\u00e9di\u00e9 aux maladies rares&hellip;<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false}}},"categories":[719],"tags":[9,1042,566,82,52,1495,13,45,58,1006,587,83,59],"jetpack_publicize_connections":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - 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