{"id":20651,"date":"2023-07-10T11:23:18","date_gmt":"2023-07-10T09:23:18","guid":{"rendered":"https:\/\/buzz-esante.fr\/?p=20651"},"modified":"2023-07-10T11:25:17","modified_gmt":"2023-07-10T09:25:17","slug":"rdkt-premier-dispositif-medical-connecte-pour-accelerer-la-prise-en-charge-des-maladies-rares","status":"publish","type":"post","link":"https:\/\/buzz-esante.fr\/rdkt-premier-dispositif-medical-connecte-pour-accelerer-la-prise-en-charge-des-maladies-rares\/","title":{"rendered":"RDK : premier dispositif m\u00e9dical connect\u00e9 pour acc\u00e9l\u00e9rer la prise en charge des maladies rares"},"content":{"rendered":"<p><strong>Pour combattre l\u2019errance diagnostique des patients atteints de maladies rares, une nouvelle application web et mobile pour les professionnels de sant\u00e9 est d\u00e9sormais disponible : RDK (Rare Disease Knowledge). D\u00e9couverte.<\/strong><\/p>\n<p>Issue d\u2019un partenariat public-priv\u00e9 unique qui s\u2019appuie sur l\u2019expertise d\u2019Orphanet-Inserm, la technologie de Tekkare\u00ae, l\u2019engagement soci\u00e9tal de As We Know\u00ae et le soutien de sponsors comme Amylyx et Pfizer, <a href=\"https:\/\/rdk.asweknow.com\/\" target=\"_blank\" rel=\"noopener\"><strong>RDK<\/strong><\/a> (Rare Disease Knowledge) est la premi\u00e8re application web et mobile pour les professionnels de sant\u00e9 con\u00e7ue pour combattre l\u2019errance diagnostique des patients atteints de maladies rares.<\/p>\n<p>Aujourd\u2019hui, 300 millions de personnes sont touch\u00e9es dans le monde, plus de 6200 maladies rares sont r\u00e9pertori\u00e9es et le d\u00e9lai moyen de diagnostic pour un patient est de 5 ans \u00e0 partir des premiers sympt\u00f4mes. Face \u00e0 ce constat,\u00a0 As We Know\u00ae, Tekkare\u00ae et Orphanet-Inserm ont uni leurs forces pour co-d\u00e9velopper RDK, un dispositif m\u00e9dical innovant gratuit con\u00e7u pour les praticiens, au service des patients.<\/p>\n<p><img decoding=\"async\" data-attachment-id=\"20652\" data-permalink=\"https:\/\/buzz-esante.fr\/rdkt-premier-dispositif-medical-connecte-pour-accelerer-la-prise-en-charge-des-maladies-rares\/rdk\/\" data-orig-file=\"https:\/\/buzz-esante.fr\/wp-content\/uploads\/2023\/07\/RDK.png\" data-orig-size=\"800,450\" data-comments-opened=\"0\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"RDK\" data-image-description=\"\" data-image-caption=\"\" data-medium-file=\"https:\/\/buzz-esante.fr\/wp-content\/uploads\/2023\/07\/RDK-300x169.png\" data-large-file=\"https:\/\/buzz-esante.fr\/wp-content\/uploads\/2023\/07\/RDK.png\" class=\"aligncenter size-full wp-image-20652\" src=\"https:\/\/buzz-esante.fr\/wp-content\/uploads\/2023\/07\/RDK.png\" alt=\"\" width=\"800\" height=\"450\" srcset=\"https:\/\/buzz-esante.fr\/wp-content\/uploads\/2023\/07\/RDK.png 800w, https:\/\/buzz-esante.fr\/wp-content\/uploads\/2023\/07\/RDK-300x169.png 300w, https:\/\/buzz-esante.fr\/wp-content\/uploads\/2023\/07\/RDK-768x432.png 768w, https:\/\/buzz-esante.fr\/wp-content\/uploads\/2023\/07\/RDK-585x329.png 585w, https:\/\/buzz-esante.fr\/wp-content\/uploads\/2023\/07\/RDK-250x141.png 250w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/><\/p>\n<p>Fruit de plus de 2 ans \u00bd de recherche et de d\u00e9veloppement, RDK (Rare Disease Knowledge) a pour vocation d&rsquo;am\u00e9liorer consid\u00e9rablement le travail des professionnels de sant\u00e9 en mati\u00e8re de d\u00e9tection et de connaissance des maladies rares.<\/p>\n<p>\u00ab <em>La collaboration avec Orphanet s\u2019est av\u00e9r\u00e9e \u00eatre une symbiose parfaite, r\u00e9unissant leur expertise sur les maladies rares <\/em><em>et l\u2019ing\u00e9nierie des connaissances et notre technicit\u00e9 en mati\u00e8re de donn\u00e9es de sant\u00e9 et d\u2019exp\u00e9rience utilisateur<\/em> \u00bb d\u00e9clare Bruno Sarfati, Fondateur et Pr\u00e9sident de Tekkare\u00ae &amp; de As We Know\u00ae, initiateur du projet RDK. \u00ab <em>Nous nous engageons <\/em><em>\u00e0 poursuivre nos investissements, au-del\u00e0 des 500.000 \u20ac d\u00e9j\u00e0 investis, pour ajouter de nouvelles fonctionnalit\u00e9s \u00e0 RDK <\/em><em>et soutenir son d\u00e9veloppement au-del\u00e0 de l\u2019Hexagone<\/em> \u00bb pr\u00e9cise-t-il.<\/p>\n<p>Il s&rsquo;agit d&rsquo;un dispositif m\u00e9dical connect\u00e9 (classe 1) qui permet aux professionnels de sant\u00e9 d\u2019identifier potentiellement une ou plusieurs maladies rares en acc\u00e9dant \u00e0 toutes les connaissances disponibles et actualis\u00e9es sur le sujet, mais aussi de s\u2019orienter vers les \u00e9tablissements de sant\u00e9 experts pour raccourcir le parcours vers le diagnostic. RDK s\u2019appuie sur Orphanet, la base publique de donn\u00e9es et de connaissances en ligne sur les maladies rares.<\/p>\n<p>L&rsquo;application poss\u00e8de 3 fonctionnalit\u00e9s principales :<\/p>\n<ul>\n<li>Effectuer une recherche par signe ou sympt\u00f4me pour orienter le professionnel de sant\u00e9 en quelques secondes vers un premier niveau d\u2019identification de potentielles maladies rares<\/li>\n<li>Proposer les centres experts susceptibles de diagnostiquer et d\u2019indiquer la prise en charge de la ou des maladies rares identifi\u00e9es<\/li>\n<li>Acc\u00e9der aux connaissances actualis\u00e9es sur les maladies rares \u00e0 travers des fiches de synth\u00e8se<\/li>\n<\/ul>\n<p>L&rsquo;application est disponible dans l&rsquo;<a href=\"https:\/\/apps.apple.com\/fr\/app\/rdk\/id6450374959\" target=\"_blank\" rel=\"noopener\"><strong>App Store<\/strong><\/a> et dans <a href=\"https:\/\/play.google.com\/store\/apps\/details?id=com.asweknow.rdk\" target=\"_blank\" rel=\"noopener\">Google Play<\/a>.<\/p>\n<p>L&rsquo;errance diagnostique chez les personnes atteintes de maladies rares repr\u00e9sente un v\u00e9ritable d\u00e9fi de sant\u00e9 publique. Pour la Dr Ana Rath, Directrice de l\u2019unit\u00e9 INSERM US14 et Coordinatrice du r\u00e9seau international Orphanet, \u00ab <em>Parce qu\u2019elle <\/em><em>aidera les m\u00e9decins \u00e0 orienter et \u00e0 prendre en charge les patients potentiellement atteints de maladies rares, RDK est <\/em><em>une application \u00e0 forte valeur soci\u00e9tale qui optimise les connaissances d\u00e9velopp\u00e9es par Orphanet au fil des 25 derni\u00e8res <\/em><em>ann\u00e9es gr\u00e2ce au soutien public<\/em> \u00bb.<\/p>\n<p>RDK a aussi \u00e9t\u00e9 rendu possible gr\u00e2ce au soutien des laboratoires Pfizer et Amylyx, qui partagent un engagement fort et des objectifs communs sur la r\u00e9duction de l\u2019errance diagnostique et la fluidification du parcours patient dans la prise en charge des maladies rares.<\/p>\n<p><em>Source : As We Know<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Pour combattre l\u2019errance diagnostique des patients atteints de maladies rares, une nouvelle application web&hellip;<\/p>\n","protected":false},"author":2,"featured_media":20652,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_lmt_disableupdate":"","_lmt_disable":"","jetpack_post_was_ever_published":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false},"version":2}},"categories":[3419,54],"tags":[1063,7489,1042,566,82,1006,1007,36,7487,7486,587,7488],"class_list":["post-20651","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-a-la-une","category-m-sante-m-health","tag-application-mobile-sante","tag-as-we-know","tag-digital-sante","tag-e-sante","tag-esante","tag-maladies-rares","tag-orphanet","tag-patient","tag-rare-disease-knowledge","tag-rdk","tag-sante-2-0","tag-tekkare"],"jetpack_publicize_connections":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.7 - 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